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parent stories

A Mother’s Journey: Cristine Nguyen’s Story

My daughter Kelly was diagnosed with scoliosis when she was eight years old. We just went to the doctor for a normal check-up, like always. But during the exam, he kept telling her to bend forward. He didn’t say much, but I could tell something was wrong. Then he brought…...

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A Mother’s Journey: Lilian Karas’s Story

I was in total disbelief.  Georgia had bent forward to pick up a piece of clothing she had just changed out of.  Normally her long brown hair would cascade over her back, but this time her hair was pulled up, exposing the unevenness of her back.  Immediately, my thoughts were…...

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A Mother’s Journey: Jyoti Baldawa’s Story

When your child is diagnosed with something you’ve never even heard of, the world suddenly becomes a very confusing and frightening place. That was my world the day we were told our little Diya, just four years old at the time, had idiopathic scoliosis....

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Joelle Downes

Sitting in the doctor's office, I braced myself for the news. When she said those words matter-of-factly, "We’re going to need to put you in a brace. You’ll need to wear it 18-20 hours a day. It might help, but it might not," I couldn’t hold back my tears. I…...

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