Who We Are & What We Do
Setting Scoliosis Straight is a non-profit 501(c)(3) organization devoted to empowering families impacted by scoliosis through education, connection, and research. Our mission is to support discoveries and advance techniques in the treatment of scoliosis in children and adolescents worldwide. By focusing on setting scoliosis straight, we aim to improve the quality of life for affected families.
Scoliosis
Support
for Patients
& Families
The charitable division of our organization is dedicated to educating patients and families through trusted, evidence-based information while raising critical funds to advance scoliosis research and patient care. Through our initiatives, we connect families with supportive programs and provide a space for guidance, encouragement, and inspiration throughout their scoliosis treatment.
Read inspirational stories from real patients who share their scoliosis journeys to offer hope, insight, and encouragement for those newly diagnosed.
Patient Stories
Read stories from parents sharing their family’s scoliosis experience to provide guidance, reassurance, and support for other caregivers.
Parent Stories
Hear from experts and patients as they come together to discuss real scoliosis experiences, treatment insights, and empowering conversations.
Scoliosis Podcast
Watch leading surgeons and patients share information and real‑world perspectives to help families navigate scoliosis with confidence.
Patient Webinars
See some of our committees and learn how you can join to support our projects, raise awareness, and strengthen the scoliosis community.
Committees
Every child affected by scoliosis deserves
a healthier and happier life.
Your Journey
For a child with scoliosis,
a healthier future starts, and ends, with research.
Programs & Initiatives for Surgeons & Healthcare Providers
The research division of our organization, the Harms Study Group (HSG)—named after our founder, Professor Juergen Harms—has been dedicated to advancing scoliosis treatment for children and adolescents through clinical research for over 30 years. In addition to driving innovation in patient care, we also support surgeons through educational initiatives and professional development programs designed to improve surgical outcomes and advance the field of scoliosis care.
The HSG was founded in 1995 and has grown into a collaborative network of 45 dedicated surgeon members across 30 research sites, all working together.
Harms Study Group
The SPP is a quality improvement initiative designed for surgeons to optimize performance and improve patient outcomes in treating scoliosis.
Surgeon Performance Program
We host 3 annual surgeon webinars to share evidence‑based techniques that helps other surgeons improve care for children with scoliosis.
Surgeon Education Webinars
Invest in children. Research is the path to a healthier future.
New Patient Stories
You are never alone on this journey. Discover inspiring stories from others who have walked the scoliosis path and find strength in their experiences.
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Ashlyn Cordes’s Patient Story
Discover Ashlyn Cordes's inspiring scoliosis journey and how she found strength through challenges during her junior high years.
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Phoebe Fan’s Patient Story
A month of limping and uneven shoulders at eight years old cost me six years of physical therapy, four years of bracing, and seven years of a writhing twist in…
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Traci Miele’s Patient Story
My story started in 1991. At 11 years old, I was hospitalized for severe dehydration (totally normal for me after nasty stomach bugs!). When the Dr. put the stethoscope on…
Upcoming Events
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24 Jun 2026You Are Not Alone Webinar Online
June is a special month for us as we celebrate Scoliosis Awareness Month, a time dedicated to education, connection, and…
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24
Jun
2026
You Are Not Alone Webinar Online
- 24 Sep 2026
Why Support Setting Scoliosis Straight?
We are working hard to support the scoliosis community. Hear from our SSS President, Orthopedic Surgeons, Executive Director, Patients and Parent as they talk about their experience with Scoliosis Scoliosis Straight.
