Patient Stories

Alyssa Holtrust

Hello, my name is Alyssa and I am a scoliosis fighter! I have been a dancer since I was 3 years old. I loved everything about dance but as I got older, I became concerned about my appearance. When receiving my scoliosis diagnosis at 15 years old, I felt relieved because I finally had an answer as to why I only had one curve at my waist, why my shoulders seemed out of line, and why I was constantly in pain. What I thought was a “normal” part of development was so much more. My orthopedic surgeon recommended that I should wear a brace for 23 hours a day for 7 days a week until I stopped growing. Unfortunately, the brace was too expensive. I knew I needed to stay active, so I kept dancing alongside my peers for several years, but my condition worsened rapidly. I began to experience numbness in my toes which then grew to my legs; my pain also increased drastically. I had an ice pack and topical pain cream on hand during each dance practice. The muscle I had built from dancing for so long kept me standing, but my orthopedic surgeon made it clear to me that if I did not undergo corrective surgery, I could be in a wheelchair before I turned 30 years old. When I was 19 years old, I had a spinal fusion (T4-L3) and my outlook on life completely changed. I was angry, and I felt that my quality of life had decreased. I had incredible support from my family and friends, but I didn’t have anyone in my life who understood my condition and dancing wasn’t enjoyable anymore. I wasn’t aware that there was a whole community of young women and men experiencing the same thing as me.

I decided I needed to make a change. I slowly started to become active again to build up my strength. I tried yoga, weightlifting for women, cycling, and kickboxing. All of these activities helped build up my confidence to begin dancing again in 2019. I realized for almost three years that I had been standing in my own way of continuing to do what I really loved which was dance. Dancing again has been no easy feat, but it has been one of the most rewarding experiences. I started looking for ways to inspire other young women and men to continue what they are passionate about despite feeling insecure or having a limited range of motion. If you or someone you know has scoliosis, show your support by making them feel comfortable, loved, and continue to encourage them. Remind your loved one that their experience is normal. I’ve been given another chance at life to remain active and I’ve learned many valuable lessons about personal growth. I am so thankful to have my family and friends support me during my experience!

Here are some of my post-surgery tips:

  1. It’s painful, so try to maximize your comfort – use ice packs, extra pillows, and wear loose fitting clothing. Maybe pick up a pair of fun fuzzy socks too!
  2. Follow the instructions from your surgeon – if he/she says it’s time to walk, set a goal for yourself (even if it’s just a few steps) and do it!
  3. Ease back into exercise – be mindful of how your body feels and consult with your doctor about low-impact stretches or exercises to build up your strength.
  4. Let other people help you – after surgery you may be more dependent on people around you for assistance. As much you may want to be independent (like myself), your loved ones will want to help, so let them!
  5. Stay positive – do things that make you smile during recovery like reading a book, watching movies, playing games with your family and friends, and setting achievable goals for yourself. You can do it!

Read more patient stories like this from around the world.

Post a comment