Patient Stories

My Scoliosis Journey

I was just four years old when my general physician diagnosed me with idiopathic scoliosis. At the time, neither my parents nor I knew what it was. All we knew was that we needed to attend follow-up appointments every six months to monitor the curve before it became too severe. These appointments were always nerve-wracking because, for a long time, my curve was at 24 degrees—just under the threshold for requiring a back brace. If it reached 25 degrees, I would need to start bracing.

Unfortunately, after COVID hit in 2020, we missed an appointment and didn’t return for a year. When we finally did, we learned that my curve had progressed to 43 degrees, and I had to start back bracing immediately. My parents were eager to avoid surgery, so they took me to a chiropractor two hours away from home, four days a week before school, for three months. Despite our efforts, it didn’t make a difference. Eventually, we went back to the doctor, and I began back bracing.

Back bracing was uncomfortable and made school challenging, especially since my clothes fit differently and I had to attend regular appointments to adjust the brace. I wore it for 20 hours a day, and at first, it seemed to help. My curve even decreased. But six months later, it progressed again, and surgery became unavoidable. I stopped bracing and continued with my normal life until the surgery.

I underwent spinal fusion surgery during winter break of eighth grade at 13 years old. Returning to school three weeks post-op was painful, and I had to ease back into it with half-days before progressing to full days. I had to give up activities like swimming and P.E., which I loved.

Focusing on my mental health was crucial to my recovery. It wasn’t easy, but through determination and resilience, I’ve made it. The scar from my surgery is now a part of who I am, and I’ve learned to embrace it as a symbol of my strength and perseverance.

Currently, at almost two years post-op, I am back to normal, and I am incredibly grateful for the unwavering support of my parents and the expertise of my doctors in treating my scoliosis. I’m now able to engage in any exercise freely—something I once thought would be impossible

If I could offer advice to anyone facing a similar journey, it would be to stay strong and be patient with yourself. Recovery takes time, and it’s important to focus on both your physical and mental well-being. Surround yourself with supportive people, and don’t be afraid to ask for help when you need it. This journey may be challenging, but it will shape you into a stronger person. Embrace the process and be proud of how far you’ve come.