Patient Stories

Hi! My name is Savanna and I was diagnosed with scoliosis at 15 years old.

I found out I had scoliosis at a regular check-up, where my doctor noticed a mild curve. After getting an X-ray, I found out I had an S-shaped curve of 18 and 22 degrees. I went to physical therapy for a few months before seeing a specialist. At that appointment, I had X-rays taken again and discovered my curves had progressed to 25 and 28 degrees. That was when I found out I would need to wear a brace full time to prevent my scoliosis from getting any worse.

Just two days later, I was fitted for my brace, which I wore 20+ hours a day over the next year and a half. The transition to bracing was difficult as I was just starting sophomore year of high school — a time where I desperately wanted to fit in, not stand out. I didn’t know anyone with scoliosis, especially not a brace, which left me feeling really lonely and embarrassed. I spent so much time worrying about my posture, or choosing the baggiest clothes to wear that I missed out on a lot of opportunities for friendship or fun experiences. Looking back, I wish I had embraced my brace more, but also recognize how challenging it is to wear something that makes you stand out in such a visible way.

As of my most recent X-rays, my curves are 25 and 27 degrees. I am so grateful for my brace and the role it played in preventing my scoliosis from progressing to the point where I would have needed surgery. I am currently a college student and am actively involved in many clubs and organizations in my school, while being able to live an active lifestyle and enjoy many things that were once difficult because of my brace.

I want to share my story because I know how isolating scoliosis and bracing can feel, and I want to help others feel less alone. Bracing is a long journey, but there are so many great resources and communities available to help (SSS, for example!) If you are currently wearing a brace, always remember you are not alone and your brace does not define who you are!