Sosie Downes joined the SSS Patient Volunteer Committee in 2025, and we are truly delighted to have her on our team. Sosie brings genuine passion, steady resilience, and a heartfelt dedication to supporting young patients who may be facing the uncertainty of a scoliosis diagnosis. As she continues her volunteer journey with us, she is excited to learn, grow, and gain meaningful experience while contributing to our mission in a thoughtful and impactful way.
Sosie’s scoliosis journey began when she was very young, leading to years of monitoring and bracing until her spine stabilized as she reached skeletal maturity. Although her curve is no longer progressing, she continues to monitor her scoliosis annually and is thoughtfully considering whether spinal fusion may be part of her future care.
We are grateful to have Sosie in our volunteer community and look forward to the compassion, insight, and positivity she brings to the team.



