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Patient Stories

Chad Biro

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Valerie Chapman

MY JOURNEY WITH SEVERE SCOLIOSIS I was thirteen when I was diagnosed with severe scoliosis. Wearing a brace wasn’t even an option for me.  The only thing I could do was have surgery, and I’ll never forget what it felt like when I discovered that this would be the only…...

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Tara Vasi

I was diagnosed with scoliosis in 6th grade during a routine annual check in the locker room during gym class. I didn’t know what was going on at the time or what the gym teacher was looking for, but when she tapped me on the shoulder and told me to…...

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Robert Savich

Detroit Marathon 26.2 Mile I have scoliosis that started in middle school and grew to an 85% curvature by the end of high school.  I had a total of four major back surgeries, fusions—with rods and all.  The last surgery removed all of my hardware, as the initial fusions held.…...

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Rachel Johnson

When I was fourteen years old, I was blindsided by a diagnosis of scoliosis. I was suddenly faced with the reality of having a severe curve in my spine that could only be corrected by spinal fusion surgery. I had been a passionate dancer since I was three years old,…...

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Nordirjon Sobirov

Nearly four years ago, Nodirjon Sobirov underwent surgery with Dr. Baron Lonner, a member of the Setting Scoliosis Straight Foundation, in order to correct his severe case of scoliosis. Nodirjon, a teenage immigrant from Uzbekistan, was interviewed by the New York Daily News in 2009, six months after his surgery.…...

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Lisa Tran

My name is Lisa, and I am currently 26 years old. I was diagnosed with scoliosis when I was in middle school during a physical in P.E. I was unfamiliar with the condition, and it was all very frightening for me. Initially, I was referred to Dr. Peter Newton at…...

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Lindsay Gordon

Strut for Scoliosi Scoliosis has led me down a curvy path with many ups and downs, but Dr. Jack Flynn, at Shriners Children’s Hospital in Philadelphia, constantly reminded me, “You are running a marathon, not a race.” This line has always resonated with me in times of despair. Although it…...

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Lena Chesnut

Lena was diagnosed with Idiopathic Scoliosis at age seven. In 2010, Lena’s curve had progressed to a 52 degree curve, and she needed urgent surgical intervention. On her fourteenth birthday, Lena was released from Rady’s Children’s Hospital. Her surgery was a complete success and she even appeared in our Scoliosis…...

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