Patient Stories

MY JOURNEY WITH SEVERE SCOLIOSIS I was thirteen when I was diagnosed with severe scoliosis. Wearing a brace wasn’t even an option for me.  The only thing I could do was have surgery, and I’ll never forget what it felt like when I discovered that this would be the only…...

Detroit Marathon 26.2 Mile I have scoliosis that started in middle school and grew to an 85% curvature by the end of high school.  I had a total of four major back surgeries, fusions—with rods and all.  The last surgery removed all of my hardware, as the initial fusions held.…...

Nearly four years ago, Nodirjon Sobirov underwent surgery with Dr. Baron Lonner, a member of the Setting Scoliosis Straight Foundation, in order to correct his severe case of scoliosis. Nodirjon, a teenage immigrant from Uzbekistan, was interviewed by the New York Daily News in 2009, six months after his surgery.…...

My name is Lisa, and I am currently 26 years old. I was diagnosed with scoliosis when I was in middle school during a physical in P.E. I was unfamiliar with the condition, and it was all very frightening for me. Initially, I was referred to Dr. Peter Newton at…...

Strut for Scoliosi Scoliosis has led me down a curvy path with many ups and downs, but Dr. Jack Flynn, at Shriners Children’s Hospital in Philadelphia, constantly reminded me, “You are running a marathon, not a race.” This line has always resonated with me in times of despair. Although it…...

Lena was diagnosed with Idiopathic Scoliosis at age seven. In 2010, Lena’s curve had progressed to a 52 degree curve, and she needed urgent surgical intervention. On her fourteenth birthday, Lena was released from Rady’s Children’s Hospital. Her surgery was a complete success and she even appeared in our Scoliosis…...