May 2016 marked a huge milestone for Setting Scoliosis Straight in our pursuit to become a leading resource in evidence-based patient education. On May 14th, Shriners Hospitals for Children, PA generously hosted our first patient education course, Power Over Scoliosis.
Grateful Patient Lindsay Gordon is no stranger to charitably contributing to Setting Scoliosis Straight’s outreach. In 2014, she and her mother, Robin Gordon, hosted an awareness event that raised over $8,000 for our foundation, and now Lindsay is back—asking you to Strut for Scoliosis.
Philadelphia family organizes Super Run to benefit Setting Scoliosis Straight research efforts!
On our 20th Anniversary, the Setting Scoliosis Straight and Harms Study Group threw our first gala in Las Vegas, NV. The gala consist of fun music, fine dining, and four wonderful and inspirational grateful patients speaker. Read more about our four grateful patients in this newsletter.
Setting Scoliosis Straight and The Harms Study Group’s 2014 Annual Meeting was held in Las Vegas from January 2nd to January 4th. Highlights from the meeting include: Study Group Developments, Adolescent Idiopathic Scoliosis, Scoliosis in Cerebral Palsy, Scheuermann’s Kyphosis, & Post-op Motion.
The International Meeting of Advanced Spinal Techniques was held in Vancouver this year. On Friday, July 12th, the members of The Harms Study Group met to discuss current research projects and new research development. Surgeon members evaluated and ranked research topics for AIS and Scoliosis in Cerebral Palsy to ensure that the most pressing treatment issues receive focus first.
Welcome to our first newsletter of 2013! We would like to gives you guys a quick review of our work on 2012 and update you guys on our 2012 Annual Meeting. We would like to take this time to thank all of our supporters who donated to us in 2012. Due to the success of the foundation’s efforts to raise funds for the Harms Study Group, two research efforts will be internally funded in 2013.
Welcome to our second newsletter of 2012! In our last newsletter, we told you about our foundation's new name. We now have a new location to boast about as well! In July, Setting Scoliosis Straight moved off of the Rady Children's Hospital Campus and into an office in Mission Valley. We are still located in San Diego, and we thank Rady Children's Hospital for housing us for so many years, but as you can tell by the picture, we are excited to have our very own space!
Welcome to our first newsletter of 2012! This New Year brings with it many changes for our foundation. First and foremost, the biggest change is our name change. In an effort to better communicate what kind of work we do to those who are unfamiliar with Harms Study Group, the Harms Study Group Foundation had been rebranded, and we are now Setting Scoliosis Straight!
Welcome to The Harms Study Group's last newsletter of 2011! In this edition, we'll provide you with a very general overview of just some of the research we've conducted over the past year, and we'll also include a general overview of some of our findings that were shared with our research community.
As you may know, there are several different curve patterns of scoliosis, and surgeons use several factors to determine how to best correct each different pattern. The HSG set out to determine the best way to correct main thoracic curves, one of the most common patterns. To correct scoliosis surgically, a surgeon attaches rods along the vertebrae with screws or hooks, this is called instrumentation.
2010 was a very productive year, and we would like to demonstrate the importance of all the data provided by HSG research participants by summarizing some research highlights presented at the several international scientific meetings attended by HSG surgeons throughout the year. Your participation in HSG research studies provides vital information that could improve treatment of scoliosis in the future.
August 2010 edition of the Harms Study Group (HSG) Newsletter! As an important participant in HSG research, we want to connect with you to share the latest news from our study group, introduce the hard working surgeons and staff from our sites, provide inspirational stories from patients like you, and last but not least, thank you for making our research a reality! In this edition we will be featuring the staff and patients from our Delaware site, The Nemours Children’s Clinic, located in Wilmington, DE.
My name is Jaimie and I am currently 20 years old. I was diagnosed with scoliosis at age fourteen in the middle of eight grade. When I first found out the news while sitting in the doctor’s office, I was devastated, heartbroken, and confused. I wasn’t even sure what scoliosis was, all I knew was that I had a severe case and surgery was necessary to prevent life-threatening complications later in life.
WELCOME to first Harms Study Group (HSG) Newsletter! This newsletter has been created to connect with the patients who have made the HSG research a reality. The research of the HSG would not be possible without the patients who allow their information to be used in our studies. Thank you!