The Setting Scoliosis Straight Foundation, formally known as Harms Study Group Foundation, is a not-for-profit charitable foundation that was established in 2008. Its purpose is to conduct fundraising efforts in support of the Harms Study Group, with a goal to further support and advance techniques in the treatment of spinal deformities in children and adolescents.
The Setting Scoliosis Straight Foundation is in its infancy, but the current impact on improving patient outcomes through Harms Study Group research efforts has been significant.
The surgeons who devote their time to the Harms Study Group remain focused on its commitment to be internationally recognized for the highest quality published research on new spinal deformity surgery techniques. There are, however, many more questions than answers, and spinal deformities continue to affect the lives of many young people who can, and should, have a chance at a better life.
The Setting Scoliosis Straight Foundation and Harms Study Group work together to support discoveries, and advance techniques, in the treatment of spinal deformities in children and adolescents worldwide.
Through patient family education, physician education, and multi-center clinical research, we provide the latest advances in spinal deformity treatment and surgical techniques.
Through internationally recognized research, we aspire to create a future where children and adolescents with spinal deformity will have the ability to live healthier, happier, and more productive lives.
It all began in 2008 when the Harms Study Group formed The Harms Study Group Foundation, a non-profit 501(c)(3) corporation, to support the research efforts of the Harms Study Group.
The foundation development is well underway with the formation of its first board of directors. The primary goal of this leadership is to generate funding for research and education and develop opportunities for the public to provide charitable gifts.
In 2010, through support from the foundation, the medical textbook, Idiopathic Scoliosis: The Harms Study Group Guide to Evaluation and Treatment was published. It was an immediate best-seller and a giant first step for the Harms Study Group Foundation in supporting discoveries in spinal deformities through education.
The Harms Study Group Foundation began its fundraising efforts and over $100,000 was raised to support research and education.
In 2011, the HSG foundation supported the Harms Study Group efforts to complete a revised version of “Adolescent Idiopathic Scoliosis: Navigating Your Journey–A Guide for You and Your Family.” Twenty-five thousand copies were printed. This important patient education booklet was positively received.
In an effort to resonate with individuals outside of the scientific community, The Harms Study Group Foundation was officially renamed, the “Setting Scoliosis Straight Foundation”. Our new name communicates our mission to ‘set scoliosis straight’ for patients and health professionals through education and rigorous scientific research.
The first ‘non-gala’ fundraiser for Setting Scoliosis Straight generates over $25K for spinal deformity research and education
Through support from the Setting Scoliosis Straight Foundation, the patent education handbook, “Adolescent Idiopathic Scoliosis: Navigating Your Journey–A Guide for You and Your Family” was translated into Turkish and Latin Spanish, for a total of 4 foreign language translation for the global distribution of this valuable patient and family educational resource.
The Setting Scoliosis Straight foundation board of directors grew to 14 members.
In January 2015, a celebratory gala is hosted by Setting Scoliosis Straight to honor the 20th anniversary of the Harms Study Group and charitable contributions soar to over $679,000 to honor the two decades of research contributions of the group.
The second version of the patient education handbook “Adolescent Idiopathic Scoliosis: Navigating Your Journey–A Guide for You and Your Family” was printed.
The surgeon education course, Evidence-Based Pediatric Spinal Deformity Care, was held to further disseminate the evidence-based research findings of the HSG to our surgeon colleagues to strengthen treatment decision making.
The inaugural Setting Scoliosis Straight patient education course, “Power Over Scoliosis” was held in Philadelphia on May 14th with over 150 attendees followed that evening by the Star Struck Gala, a fundraising and Scoliosis awareness gala.
The second surgeon education course was held to further enhance surgeon education and treatment decision making thru evidence based research results.
The Setting Scoliosis Straight board of directors established three strategic goals focused on:
1. Improving quality and safety in AIS treatment outcomes.
2. Directing research towards improving quality of life for all patients with scoliosis.
3. Be the primary source of accurate, evidence-based information for patient education.
In 2017, the 2nd annual Setting Scoliosis Straight patient education course, “Power Over Scoliosis” was held in Miami followed by the Scoliosis awareness event, “Give BACKS Hope.” The amazing Miami community came together to learn together and to support research in spinal deformities.